Articolo speciale
La definizione della eleggibilità alle cure palliative pediatriche
The definition of eligibility criteria to paediatric palliative care
Federico Pellegatta1, Lucia De Zen2, Pierina Lazzarin3, Momcilo Jankovic4, Marina Bertolotti5, Luca Manfredini6, Antonino Aprea7, Franca Benini8
1Clinica Pediatrica, Università degli Studi Milano-Bicocca, Fondazione MBBM, ASST Monza
2Assistenza domiciliare e Cure Palliative Pediatriche, AAS5 Friuli Occidentale, Pordenone
3Centro Regionale Veneto di Terapia del Dolore e Cure Palliative Pediatriche; Dipartimento della Salute della Donna e del Bambino, Università di Padova
4Day Hospital di Ematologia Pediatrica, Fondazione MBBM, AO San Gerardo, Monza
5Servizio di Psico-oncologia Pediatrica, SC di Oncoematologia e Centro Trapianti, AOU Città della Salute e della Scienza, Torino
6Centro Regionale Ligure di Terapia del Dolore e Cure Palliative Pediatriche, Istituto Giannina Gaslini, Genova
7Centro Specialistico di Psicologia Sanitaria e Ospedaliera; Associazione Genitin Onlus, Policlinico Agostino Gemelli, Roma
Novembre 2016 - pagg. 573 -578
Abstract
Background - In recent years there has been a slow but steady change in the care of the
infant/child/adolescent patient needs: new types of patients, new situations and new objectives
of “health”. One of these “novelties” is the need of Palliative Care in the paediatric
population. The definition of eligibility of an infant/child/adolescent to Paediatric
Palliative Care is however far from being simple. You cannot take it directly to the inclusion
criteria for adult palliative care because children have very specific disease stories,
often related to their age and the time duration of the disease itself.
Objectives - The objective of the work is to create a document that contains the criteria for the definition of eligibility in Paediatric Palliative Care.
Methods - The Italian Society of Palliative Care has identified a group of eight professionals (doctors, nurses, and psychologists) with expertise in Paediatric Palliative Care who worked from May 2014 to February 2016, incorporating the review of the available literature with own clinical experience, in order to produce a consensus conference. The produced document was reviewed by a larger group of experts.
Results - The teamwork have defined the eligibility criteria to the Paediatric Palliative Care for infants/children/adolescents with oncological disease, not cancer, considering not only the underlying disease but also the complexity of care and the health needs.
Conclusions - The document provides a practical instrument to clarify the definition of eligible children to Paediatric Palliative Care and facilitate their takeover by the dedicated welfare services in compliance with the content of the law no. 38.2010.
Objectives - The objective of the work is to create a document that contains the criteria for the definition of eligibility in Paediatric Palliative Care.
Methods - The Italian Society of Palliative Care has identified a group of eight professionals (doctors, nurses, and psychologists) with expertise in Paediatric Palliative Care who worked from May 2014 to February 2016, incorporating the review of the available literature with own clinical experience, in order to produce a consensus conference. The produced document was reviewed by a larger group of experts.
Results - The teamwork have defined the eligibility criteria to the Paediatric Palliative Care for infants/children/adolescents with oncological disease, not cancer, considering not only the underlying disease but also the complexity of care and the health needs.
Conclusions - The document provides a practical instrument to clarify the definition of eligible children to Paediatric Palliative Care and facilitate their takeover by the dedicated welfare services in compliance with the content of the law no. 38.2010.
Classificazione MeSH
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Corrispondenza: fedepellegatta@gmail.com